The letters page http://www.b12deficiency.info/letters/ is full of examples of poor understanding of B12 deficiency…. but letter 7 is very different!!
If you are struggling to gain access to correct treatment and you have similar problems to this patient, maybe your GP or haematologist could benefit from reading this, frankly, amazingly supportive letter?
‘…….a treated case of pernicious anaemia and subacute combined degeneration of the cord. She requires high doses of hydroxocobalamin to maintain her general well being, i.e. 1mg intramuscularly daily.… I will leave it to yourself to make enquiries and discuss whether her hydroxocobalamin can be fully funded by the NHS.’
Many of us have problems with accessing correct treatment. Many of us try desperately to raise awareness of B12 deficiency.
If you want to learn more and know of others who do too, please share the conference information with them – http://www.b12deficiency.info/conference-2016/
Please note; This letter came to me fully redacted so I have no idea who wrote this letter or which NHS Trust they work for.