I cannot absorb B12 from food and I will require injections for life.
I’m part of the 1 in 10 people in the UK believed to be deficient in vitamin B12.
My diagnosis in 2012 and the realisation that there was such a lack of knowledge amongst health professionals made me passionate about raising awareness and giving people access to the right information. I know people who have been sectioned due to this condition, who have been misdiagnosed with Parkinson's, Alzheimer’s and bipolar and who have tried to take their own lives due to lack of adequate treatment.
For me, it became a mission. I felt (and still feel) compelled to help patients in the same situation and to help health professionals to understand the truth of the situation. There’s a genuine need for people to be able to find accurate, reliable, up to date information all in one place. Information that’s not hidden. Facts that are transparent. Help with diagnosis and support for ongoing treatment.
There isn’t a big team behind the scenes. It's me who runs and updates the site and answers your emails. I am the researcher and the administrator and I have read thousands of journals and articles on this subject over the years. This is a mission I’ve taken on myself, to fill the gap in the education of many health professionals and to give everyone a better chance of understanding B12 deficiency and taking action.
I could not do what I do without the support of my husband Damian Witty, who has been an incredible help. We are very committed to helping people navigate their way through the maze of information about B12 deficiency - and while we both have backgrounds in design, we can’t cover every aspect of running a user-friendly, resource-rich website so we have fantastic help with technical expertise from the brilliant Gareth D and rely on our community to support us and spread the word about the valuable information that we amass.
What motivates me
I know what it’s like to be a B12 deficient patient. I had to fight for correct treatment. I know first-hand the problems that people face, one of the main issues being significant under treatment.
I’m sustained by the positive feedback I get from people who have finally found what they’ve been looking for… on a site that’s FREE to use, that doesn’t charge a membership fee or restrict access to subscribers.
What you can do to help
Patients in the UK are currently unable to buy our lifesaving injectable B12 OTC (over the counter) from a pharmacy. Most are therefore restricted to just four injections a year. Many countries all over the world including EU nations - France, Germany and Spain allow their citizens to buy this essential vitamin over the counter.
Show your support. I’ve launched a petition that’s not far off 25,000 signatures. Please add yours and share far and wide.
Spread the word. If you’ve found information and resources on the site useful, please feel free to share it and don’t forget to credit the website. Working together will help transform patients’ lives and make huge savings for both GP practices and the NHS.
My promise to you
You’ll find a wealth of information here. My website will always be free from external advertising and promotions of oral supplements.
It’s not a registered charity and it doesn’t get funding: It’s a FREE information hub and a social enterprise. While I hope that one day the site will be self-supporting, it is currently a personal financial burden.
How you can help
To date, me and Damian have funded everything personally, including subsidising two conferences – investing time and energy into it because we feel so passionately about raising awareness of this condition. If you can help us by making a donation or by buying an awareness pin or bag, it would be much appreciated. You can also help by downloading our apps and crediting the website if you ‘borrow’ information from it, it's rude not to!
It’s truly is a labour of love - help us keep it going.
I’m so grateful for the support I’ve had to make the website such a valuable resource. Two people in particular deserve recognition for helping me provide the right information:
Pat put me in touch with American lifesaver - Sally Pacholok R.N. whose name is synonymous with B12 deficiency worldwide. Sally has spent the past 30 years raising awareness of B12 deficiency and I am grateful that Sally and her husband, Dr. Jeffrey Stuart allow me to use research from their book 'Could it be B12?‘ throughout the site. Please also see B12awareness.org.
I’m here to help you so please do get in touch by email at email@example.com